Massachusetts General Hospital

Undiagnosed Diseases Network launches online application portal

Thursday, September 17, 2015

The Undiagnosed Diseases Network (UDN), a clinical research initiative of the National Institutes of Health, has opened an online patient application portal called the UDN Gateway. Introduction of this application system sets the stage for the network to advance its core mission: to diagnose patients who suffer from conditions that even skilled physicians have been unable to diagnose despite extensive clinical investigation. These diseases are difficult for doctors to diagnose because they are rarely seen, have not previously been described or are unrecognized forms of more common diseases.

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Juniper Pharmaceuticals formation scientific advisory board

Friday, April 24, 2015

Juniper Pharmaceuticals, a specialty pharmaceutical company focused on developing therapeutics that address unmet medical needs in women’s health, has created a scientific advisory board (SAB) comprised of international physicians and scientists whose mission will be to provide scientific and clinical advice on the identification and advancement of product candidates for Juniper’s women’s health portfolio.

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ALS Association, Harvard, Massachusetts General collaborate with GSK

Friday, April 17, 2015

The ALS AssociationHarvard Stem Cell Institute and Massachusetts General Hospital Neurological Clinical Research Institute are collaborating with GlaxoSmithKline on a clinical trial to evaluate the potential of an anti-epileptic drug in ALS patients. In parallel testing, brain cells will be made from each patient’s stem cells to see if they can predict which patients might respond to the medicine.

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NIH forms team to chart course for Precision Medicine Initiative research network

Wednesday, April 1, 2015

A newly created team of experts in precision medicine and large clinical research studies will seek public input from the large and diverse stakeholder community interested in the development of the President’s Precision Medicine Initiative and articulate the vision for building the national participant group for the Initiative. They will help define what can be learned from a study of this scale and scope, what issues will need to be addressed and considered as part of the study design and what success would look like five and 10 years out.

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NIH awards $9M to speed development of health technologies

Monday, March 30, 2015

The NIH has selected three new proof-of-concept hubs to help speed the translation of basic biomedical discoveries into commercial products, such as new drugs, devices and diagnostics, to improve patient care and enhance health. The hubs are part of the NIH-supported Research Evaluation and Commercialization Hubs (REACH) program and will be funded $9 million over three years.

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Apple launches ResearchKit platform to tap millions of iPhone users to enroll in observational studies using apps

Monday, March 23, 2015

Apple has taken a key step this month toward helping to improve patient recruitment for medical studies with ResearchKit, a new iPhone-based medical software platform researchers can use to de­sign and administer app-based observational studies. ResearchKit will help both doctors and researchers gather patient data frequently and more accurately track disease signs using sen­sors that are on the iPhone.

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